No parent ever wants to hear that their child has cancer, organ failure or a genetic disorder that they could die from. Nobody knows how they would react or how they would cope. Family life is turned upside down and time becomes more precious than ever. You are thrown into a world you never expected to be in. You have to cope with the worry and grief of your child’s illness; trying to keep life normal for brothers or sisters; getting to and from a hospital for treatment which could be many miles away from home, all the while navigating a health system of which you have absolutely no experience.
Through all this, daily life goes on – trying to hold down a job, doing the weekly shopping, cooking meals, taking brothers and sisters to school… all these things must continue. Some families really struggle to cope.
Rainbow Trust pairs each family with a dedicated expert Family Support Worker to help them face and make the most of each new day. Having this one Family Support Worker means that families don’t have to get used to a team of different people offering various services.
Our Family Support Workers work with families in extreme and uncertain situations, so that they don’t have to manage alone. With our support, families have more time to spend with their family doing what they feel is most important when that time may be limited and even more precious.